Okay first some background. I was diagnosed with Polycystic Ovarian Syndrome when I was 13 yrs. old. Treatment was birth control. When I was 21 I stated getting blood clots. Dr. did not know why but I had to stop taking birth control. Now I take warfarin because stopping birth control did not stop the clots. At 23 I had partial hysterectomy. Uterus and right ovary was removed to alleviate some of my symptoms, the right ovary kept forming cysts that had to be removed surgically because they would get to be the size of a man’s fist. Have had very few problems with PCOS since hysterectomy. However, I hurt everywhere, I visibly swell up and I have to take a prescription diuretic (think it is spelled lasics), and severe fatigue. I also have IBS and Interstitial cystitis (control both with diet). The Dr. says I have fibromyalgia. I do not want to take the steroids and pain medicine that the Dr. is prescribing. Does anyone have any idea about what could cause the bloodclotss and other symptoms. I feel like my Dr. is not investigating whether there is a common cause between all of these different problems. I have been hospitalized many times due to swelling and blood clots, but the fatigue is my biggest complaint. Can the polycystic ovarian syndrome which is the only health problem I had until I was 20 cause these others symptoms. I still have one ovary which still gets cysts occasionally.

Hey Guys this is a video for Fibro (Fibromyalgia) Awearness it is simular to MS or ME… I do not Suffer with this condition but my Mum does so I made this to spear awearness for her and other suffers…. Hope this makes you more aware…

I have been diagnosed with fibromyalgia as a result of an allergic reaction. I have significant swelling in my joints, which seem to be closely associated with changes in weather or severe weather. Most everything I read about fibromyalgia talks about muscle issues, but mine is purely in the joints, though I did react pretty strongly to the ‘pressure points’ indicative of this disease. I cannot live forever on pain killers and anti-inflammatories.

I also suffer from migraines, infectious diarrhea. I am on plaquenil, Ibuprofen 800,Effexor 150, Now I have restless leg syndrome, Is anyone else drowning in diseases?

I noticed that insulin is an issue in both of them.
I have skin tags on my neck, but the doc says it’s not Cushing’s.

What can you tell me…besides “see your doctor!!!”???

I have been going through some ongoing extreme pain for the past 3 years and have done research on Fibromyalgia and it sounds like it could be what I have. How did you become diagnosed with it? And what do you do to treat it?

I’ve had headaches everyday for 6 years and I’m not sure what kind of headaches they are and neither does my neurologist. The levels of pain vary everyday. They are kind of a mixture of migraines, tension headaches and sinus headaches. I was just wondering if I could call that chronic pain.

Fibromyalgia message boards are excellent places to seek information online, conduct research or just simply exchange stories with other people who share the disorder. If you’re looking for fibromyalgia message boards to join, here are some you might want to take a look over:

http://www.healthboards.com

HealthBoards.com is a site that offers information about different illnesses and disorders, one of which is fibromyalgia. The site lets you go to the fibromyalgia message board immediately with a simple click to choose your own group. The message boards are listed alphabetically on the right side of the home page and you simply look for ‘fibromyalgia’ on the scroll down menu to go to the message board.
The site also has excellent features that include a comprehensive guide on health topics and information. You can research fibromyalgia online and find out about the basics of the disorder, its treatment and the latest research and medical discoveries and opinions. You can also find out about the proper diet and nutrition for people with fibromyalgia and alternative medicines that may be used to supplement your treatment.

http://www.immunesupport.com

This site is one of the largest fibromyalgia communities in the web, and has some of the busiest fibromyalgia message boards online. Simply click on the ‘community’ button and choose whether you want to chat live, post a message online or find out about the organizations, events, clinical trials, fibromyalgia doctors or support groups available in your local area.

The site also features different informational materials about fibromyalgia that you might find very useful. There are pages dedicated to the latest fibromyalgia news so you can find out about breakthroughs on the disorder.

You can also check out the research abstracts that are published online which feature the latest on new medications, therapies, vitamins and other supplements. If you’ve heard about Dr. R. Paul St. Amand’s guaifenesin treatment for fibromyalgia, you’ll find the research abstract in this website, along with other doctor-prescribed treatments.

Continue reading for more information on message boards and to discover how to sign up for our free Newsletter, covering the many natural ways to relieve fibromyalgia symptoms.

http://www.arthritis.org

Arthritis.Org is a site maintained by the Arthritis Foundation that hosts an excellent fibromyalgia message board. The message board is divided into several discussion categories that make it easier for you to find the particular topic or question you have in mind. The site has certain rules you’ll need to follow so make sure you read them before proceeding.

This fibromyalgia message board features a Coping Skills page, which lets you share tips and advice on managing the disorder. The site also features valuable information about fibromyalgia including its symptoms, treatment and management. Another helpful feature is the Parents/Parenting page where people with fibromyalgia can share their experiences and ideas on how to face the common challenges fibromyalgia patients have to contend with — medical care, school, insurance and finances. The tips are posted by people who cope with fibromyalgia and are an excellent source of advice for other areas in your life.

Another feature of the site you’ll find helpful is the Focus on You page where you can share your experiences with fibromyalgia, ask others for help and advice and even meet with other members who have the same disorder. This is a comprehensive fibromyalgia message board and online resource that lets you do more than just read and post inquiries.

By: Jane Thompson

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“Something that most people feel as being non-painful, is perceived by the person with fibromyalgia as being painful,” says Russell Portenoy, MD, chairman of the Department of Pain Medicine and Palliative Care at Beth Israel Medical Center in New York City.

I was just wondering if anyone has any “tricks” for dealing with either disorder (I know they tend to go hand in hand). Anything that you have found that helps relieves any of the symptoms would be greatly appreciated, I am miserable

Also if you know of any herbal remedies that have worked for you I’d like to hear about them. (don’t worry, know my way around herbs & won’t rush into anything without checking it out first)

Thanks for any info.
Thanks so far for the info guys…has anyone tried using caffine to help with the exaustion? It’s been a catch 22 for me since I also have panic attacks & caffine makes it worse, but even WITH caffine I can barely move most days….without it I’m slower then a slug lol.